Hello!
This is the life story of our son, Maximilian.
Maximilian on 25.06.2002 in Hamburg Barmbek KH geboren.Er was born prematurely at 33 weeks of gestation with an emergency C-section to Welt.de actual birth date was 12 August.
am Before the sudden birth of our son I gegangen.Habe with Braxton Hicks contractions since the KH Reinbek but first get a labor drain to the contractions to hemmen.Nach 4 days, then I get to the KH change because the Reinbeker KH hat.Ab no Fruhchenstation since I already suspected something was not something kann.Dann vote I have to be embarrassed after 4 days of labor drops, which also works well hat.Im Barmbeker KH was then an ultrasound done, The doctors, of course, only their doctor benutzt.Plötzlich language was all so fast, I can only remember that I was told that a C-section währe.Habe need only call my husband at work, which brought our son into the world soon wird.Er was there very quickly, even before I kam.Mir in the op was the Spinal Anestesie made, so my husband was allowed in the Op halten.Ich to have all my hands have bewust mitbekommen.Wir delighted when our sunshine then showed us wurde.Wir of course also have a few names ready and we had had then the name Maximilian entschieden.Irgendwann we made friends with the idea earlier parents werden.Heut to light the medicine is so far, a premature baby is very well supplied and has a better chance of surviving healthy ... Those were our Gedanken.Doch then after 4 days was the chief doctor told uns.Er, he would have to have a conversation with us, because we have a few days since waren.Mein man had been so since a premonition that something was not quite agree konnte.Dann we sat there in the office of Chefarztes.Er had nothing positive to sagen.Er said that Max had a 3eckigen head and it was a sign of a Behinderung.Daraufhin was taken from me and my husband Max blood to see if the blood of us and of Max is slightly detectable, what he did for a disability hat.Es so are a lot of things ... After about 2 days, the result was very fast there, we could then say what Max hat.Wieder we were in the office of the chief physician gerufen.Da we were then told that Max has a chromosomal anomaly of the 4 and 5 Chromosoms.Sie but could not say anything, because it this way of chromosome anomaly never existed before, I'm hat.Und the carrier, but for me, nature has not juggled with the chromosomes as Maximilian.Sie but have given us an appointment with the best human genetics, which it should gibt.Er us in Hamburg will tell, but after the Conversation is not much we could just tell when rausgekommen.Er little as the doctor in Krankenhaus.Wir received reports of similar cases, but none of the Maxis is just like er.Ein sentence particularly struck me: a girl of 14y. has even read and write gelernt.Das we, we believe, not at Maxi passieren.Aber there are still Hoffnung.Und one should never give up hope! The first
Känguruhn at the hospital my husband was allowed machen.Ich eiversüchtig, because every parent wants their child to the first arm nehmen.Aber because I could not as yet as I wanted, after Caesarean section, he had the lead.
After a long time, stay in the Notintensiv are we then to the normal neonatal unit gekommen.Dort it was much angenehmer.Es not beeped constantly, it was not bright and Maxi was in meht Inkubator.Er Wärmebättchen had a more independent and we could wash machen.Sprich getting dressed, sit on the arm ... It was more enjoyable.
He has regularly increased and we could after a total of 7 weeks at home was the best day for nehmen.Es uns.Noch was better, because on the same day that Maxi was allowed home, had my husband's birthday.
At home:
When we got home, we did not know how we should tell our parents and relatives, what's wrong with Maximilian.
We even had to date not yet begriffen.Und it more to say other ... It was very difficult for uns.Erst about half a year, we have taken to heart, and have decided now we tell our parents. The
we had then to coffee drinking eingeladen.Uns knocked from the heart to the heavens, as one so beautiful sagt.Wir knew not how to react to würden.Lähnen Maxi, which was my biggest fear, or can they live with . But we could even figure out just when we were told haben.Also then the moment and they reacted in a first schokiert.Aber have offered us the same and always helfen.Uns much a huge stone from Herzen.Es was finally out! And then there are of course all learn from our parents.
hospital stays:
But other problems began was constantly an.Maximilian krank.Nach every breeze pains he had bronchitis after anderen.Es was then a chronic bald.Die pediatrician, we had the first, had always sent in KH, the Children's Hospital William Pen in Rahlstedt.Dort the time was very bad, I can only remember that I as soon as possible away from there wollte.Schreklich, if one only looks from the inside hospitals and the oft.Eppendorf so hernia, which he Barmbek already had and it does not hatte.Erst seen by the nurses, the pediatrician has him gesehen.Dann William pin several times, then University Hospital Kiel 2x ... Oh you have so many already displaced in the Hinterkof gelegt.Diese times were just bad and there was no end for us.
And every hospital had to look to new diagnoses gehabt.Da irgendwwann durch.Man Lehrner not so much new life kennen.Das lives is suddenly different, much intensiver.Weil you just do not know what will come.
The first residence in Kiel was also the purest horror for uns.Maxi had we got there almost verloren.Er a virus in the hospital and had he not had the heart surgery, for which he was actually there, has the Intensivstation.Er 2 receive blood transfusions, and floated in Lebensgefahr.Wir feared for his life, were at all times to ihm.Wer because already knew how long they live würde.Aber his condition improved, thank God!
After 2 weeks was allowed Maxi, still not quite stable, but zurück.Dort on the road to recovery, the station had normal heart we were then told that we should go home first, as no new date was there for the heart OP.
was then finally fixed the next date and we are only a week before the operation to Kranklenhaus because we were afraid he would be something einfangen.Tja that night Maxi got a high fever and then the surgery was postponed once again. We're back home and were slowly but surely on the way the Erschöpfung.Beim 3 times stronger than the next date was because the nurses have when we were away at lunch time the window wide open although Maxi directly at the window his crib are hatte.Ihr can you imagine what happened then was ist.Er sick again and had to return to Hause.Dieses times I almost lost my temper and I have angelegt.Wenn with the nurses on the statoin not been for my mother Währe, he would sit gehabt.Denn from me as a big as was so sick on the cardiac ward, it had to be constantly sucked off, knocked off will inhale ... And the nurse had expected, he with such a vibrant part of the back makes me, so that the mucus dissolves the war.Ohne in the bronchi which he asked us, he did it, again something to eat when we waren.Als we came back, we have heard häulen Maxi uns.Im bed and wondered he was not, sonern on the changing table and caregivers about him with this stupid thing and scrubbed rum.Ich Maxis back to the keeper had immediately said that he immediately cease to soll.Er lay with me and I have not admitted that he and my child does what he will.Ich disagreed with what he held there, and he turned it down so I did not want any measures to solve the bronchitis or mucus in the bronchi . I became almost crazy and have really held back in the last Momen me, otherwise it would have geknallt.Die whole station had noticed what was going on, but that was me, in this moment completely egal.Es not acceptable but that if a child screams, cries and the nurse are not stupid aufhörte.Wie unloving and insensitive you have? ...
Well, the OP date was now once again firmly and IDEs Anlauf.Jetzt times, everything went well with the 4 we were afraid that something goes wrong in heart op könnte.Aber it's all gone well for almost 6 Std.war Maxi on the ICU gekommen.Wir it could also equal besuchen.Diese all these hoses beep sounds of monitors ...
My husband had had a chair to take the same, I wanted to get a nurse, but had at the moment not the time to look dafür.Ich'm gone for a chair in the hallway and I was suddenly komisch.Es suddenly blacked out eyes and I fell um.Direkt on the nose and my glasses when I came back to me, was everywhere, but not on my Nase.Die was bloody and swollen.
I am probably the last all at once I had added gefallen.Die from shoulders fatigue become noticeable, after all the hardships. Now I had to
himself to the hospital so they could determine whether all ist.Die with me in order to keep me wanted there, but I did not stay, I had finally seen my son just after heart op and had to him, with him ! remain
I could go at your own risk.
was allowed after 4 days then off to the Maxi-normal children Herzstation.Alle hoses, finally, we were gedacht.Nach another 6 days We then .... entlassen.Edlich home at last to have our sunshine again
and after that Maxi was also busy, has not slept soooo much, and was finally made longer times wach.Hat small advances like the turn that was super great.
And then have almost the end of May I learn that I am pregnant (pregnancy test).
At first I did not know what to do soll.Habe geheuelt only could, I hardly einkriegen.Nach so much stress and so much anxiety for the life of my son Max and is now growing a new life in me.
I knew that Daniel would be happy if I erzähle.Als him he came home after work, I was not able to da.Aber I had an ultrasound picture on the table when he arrives that he can see it right.
After I came to Maxi after a walk back home, Dani was already there.
I asked him what he says, he has only got me and ran back the tears.
Now we had to decide whether we would take a chance or at least have decided wollten.Wir us security for the safe route and made an amniocentesis in the Bethesda Hospital Bergedorf.Natürlich we have in preliminary talks with the responsible physician, the worst questions made, one would be prepared for worst.
We were told how it would go from Equip, if the child also again hampered his würde.Da me was very bad and also because I like a castle gehäuelt dog.
How would I cope with an abortion if ... and said, and had
after amniocentesis at 12 weeks of gestation and then we wait bangen.Man and that the results present in about 10 days würde.Aber after 7 days called me to my gynecologist and sent me the news.
My heart beat up to the neck, I had to setzen.Er began, the results ...
I have only heard, it's healthy and it's a boy. Then I fell
a huge chunk of the heart and and I already häuelte.
have equal dannach I called Daniel on the work to him the good news reported.
He was very relieved and überglücklich.Ein child what is healthy to get, this is a dream for us gewesen.Und as a wish that Maxi will not wake up alone with no siblings.
The pregnancy was normal, everything was toll.Ich felt very well and was very glad!
Then, at the date precisely (9:02:04), I have slight pains and I was with Daniel in the Krankenhaus.Auf Maxi only then our neighbor and friend Ryszarda aufgepasst.Wir but then were sent home because the contractions were too weak.
But then the next day it was suddenly going right (10:02:04). At half past 4 am I'm super nasty labor and Dani have aufgeweckt.Dann we put on ourselves and our Neighbor brought back, who has cared for the super maxi, until my mother was all kam.Das then thank God I have a few vorgeplant.Dann smsn sent, it goes off and then are off to the hospital Adolf-Stift in Reinbek .
My contractions were always at a distance of 1-2 Min.Also no breaks for me.
We are in the hospital then was well worden.Ich was examined and my cervix was 3 cm open, the course did not gereicht.Damit it goes on, we have been sent to do in the hospital corridor to stroll, which suggests .. .
But it did not help, I had to re hinlegen.Schmerzmittel I could not get one, since I had a Caesarean section and so close together become pregnant bin.Ich knew it, but after trotdem painkillers geschrien.Nach hours of torture, one has then opened the bag of fluid.
has been through before our baby is not really who slept zwichendurch ein.Damit he awoke one has had geweckt.Er him with a bell around so frightened in the womb, he had reingekakt into the water.
This could then determine where the amniotic fluid auslief.Dann all went suddenly şerh fast.The heart sounds were in the cellar, nurses were nervous and the doctor was decided geholt.Man for a Caesarean section ... I have not only thought again, what's going on, is all right with my child? What happened ....
I I then agreed to do the caesarean section, for the life of my two children stood on the Spiel.Und you do everything so that everything will be fine.
Now I landed back on the operating table, I did not live Spinalanestäsie vertragen.Unten have me again and cut up, so I puked.
was then brought to the Tobi last, but was funny was es.Er there, but has not uttered the famous' gemacht.Ich slap heard again nichts.Dann it was weggebracht.Mein heart was almost stehen.Oh no, please do not I thought ...
But then I heard him, and the world has again turned to us, because she stopped kurzzeiteig.
all right, we were told. Then we were allowed
in one of our luck and enjoy Kraissäle also mother and father of a healthy baby boy to sein.Endlich einbisschen normality in our haben.Es together was a beautiful moment for us, we will not vegessen.
At home, then had to everything first einstellen.Hier silent as play therapy with Maxi.Es was a super stressful time, as well as Maxi shr much attention brauchte.Aber Tobi also had to be nursed every hour and so had to watch it, how to keep everything together verbindet.Alle therapies with Maxi and the Tobi.Wir we have also created a time in which we have turned off the phone and even the doorbell and we have kept a nap zusammen.Manche days I have not even made me right to put on, but it was so egal.Ich it had just enjoyed!
I was delighted that I was silent, but after 4 months, I found my body is a line made by the bill and the milk was desired from or to wenig.Ich supplementation had Tobi and I have quite abgestillt.Es has gereich.Aber simply not the main thing is, he got milk.
It has everything eingepändelt very fast and the day was durchstruckturiert enough that you have everything hammer out great.
It happened so much.
The 2nd heart surgery by Maxi on August 4, was then 2006.Es this time is very fast gegangen.Der stupid nurse was, unfortunately, was not allowed because of damals.Aber to Maxi, it I highly respected. The Tobi
spent the days with my Mutter.Sie had taken leave and has him in the time they are also super betreut.Natürlich besucht.Schliesslich Tobi needs me, as Maxi.
This time went pretty fast, because Maxi was no longer so sensitive to what fours and pathogen angeht.Sein body bigger and Immunstärker.Die Op was itself went well and after that the time just flew so.Nach already 10 days were as released worden.Alles was fine and the scar healed very quickly.
course, we were again super Timid, there may always something schiefgehen.Wir were super glad to be home and all 4 as normal as it will be together.
Maxi makes a lot of progress, after a very successful rehabilitation in Bad Oexen.Dort he had received many therapies, such zBdie riding therapy, occupational therapy, physiotherapy in the water ... The days were full of happiness could Terminen.Zum the Tobias this time also had a nice mit.Wir to 3 room and we felt very wohl.Dani visited us almost every Wochenende.Wir him very vermisst.Die rehabilitation was 4 weeks long, you miss a lot.
Other family members have visited us, what have we got.
At the moment it concerns us very soon gut.Bekommen Therapiebike for Max, then he can finally look forward cycling lernen.Wir forward already to a very great tension.
Now, Maxi and continues to be Therapiebike super toll.Das Lenck but he has to learn.
Right now we want a house for our family.The is not so easy because although there are government subsidies, but the funds for this year are leer.Und unfortunately we have no equity and is without the support of seed nothing.
I've also recently completed a basic qualification for childminders and fathers at the VHS Reinbek.Da I also want to earn some money to in order to save more for Maxis dolphin therapy.
Our financial situation is unfortunately right now is that we save up until now not much konnten.Immer if we had a little saved up, but we had it again wegnehmen.Das money goes just a little food for Maxi drauf.Es includes wet wipes, baby food (he can not eat anything else, because of gag reflex), and the rides with him to therapy ...
It would be nice if we could find someone who would like for us to house purchase hilft.Wir like to stay in our county, and a finished house want kaufen.Wir not build the new with the stress, because it just Nerflich for us to not create währe.Deshalb we want to buy a finished house and it must be new to garkeine case sein.Es need only have enough room for us and would like evtl.dann also room for my days the children I care.
I'm super happy that I have taken the step and habe.Nun taking the course would be nice to start with us at home with the Kindertagesbetreuung.Es if it works the way I imagine it.
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